Rheumatoid Aithritis?

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Ken0069
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Rheumatoid Aithritis?

Post by Ken0069 » Thu Mar 31, 2016 3:37 am

Anyone else have this? I was diagnosed with it last month but haven't been able to get an appointment to see a Rheumatologist yet. Was wondering what treatment others are receiving?
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Re: Rheumatoid Aithritis?

Post by pdq67 » Thu Mar 31, 2016 2:12 pm

A shot of Jack along with some Coke and 1/2 a "T-4" will do you nicely..

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Re: Rheumatoid Aithritis?

Post by woody b » Thu Mar 31, 2016 7:55 pm

My nieces husband has it. It was really bad for him for a while, but now he gets some kind of treatment once a month. (maybe an IV) I'll find out what it is next time I see him. IME he's kinda young for arthritis...early 40s or so.
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Re: Rheumatoid Aithritis?

Post by Ken0069 » Thu Mar 31, 2016 8:19 pm

woody b wrote:My nieces husband has it. It was really bad for him for a while, but now he gets some kind of treatment once a month. (maybe an IV) I'll find out what it is next time I see him. IME he's kinda young for arthritis...early 40s or so.
Thanks Woody. I'd be interested to hear what he's taking and how expensive it is because one of the drugs I see advertised a lot is Humira, but man, the possible side effects of that shit is a bitch, ie, CANCER being one of them??? I've seen ppl die of that stuff and it's not pretty.

My GP Dr sent my blood test results to a Rheumatologist over in Lynchburg that I want to see but from what I hear, he's super busy. It's been a few weeks now and still no word on an appointment? :(

Looking back, I realize now that I've been having symptoms for over a year and a half but it hasn't been that bad until within the past few months. I started getting the knots on my joints of my fingers and toes and each morning when I get out of bed now it takes me about 5 minutes or so to get them all working again. Hell even my jaw joint is screwed up as my teeth don't match up for about that same period of time.

Ennywho, I guess I shouldn't complain because I'm 70 now and have been healthy for the most part except for that ear disease I have that's taken most of my hearing. I don't take any thing daily but aspirin and Vitiman C along with the "occasional" little blue pill! :wink:

But yeah, lemmie know what you find out, and thanks again.
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Re: Rheumatoid Aithritis?

Post by woody b » Thu Mar 31, 2016 9:03 pm

I know it's not Humira that Dale's taking. I'll find out this weekend. My Mom took Humira for Crohn's. She died from hemophagocytosis, which I believe was caused, or aided by the Humira. Autoimmune illnesses can be devastating.
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Re: Rheumatoid Aithritis?

Post by WRIGHTWAY » Thu Mar 31, 2016 9:24 pm

I was diagnosed with juvenile rheumatoid arthritis when i was in kindergarten I'm 45 years old now. I rarely take anything for it but in the spring and fall i will take mobic to help with the changing season's that when it seems to bother me most. In hindsight becoming a carpenter that specializes in home exteriors was not the best idea. Best advice never stop moving.
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Re: Rheumatoid Aithritis?

Post by ijames » Fri Apr 01, 2016 12:07 am

Ken0069 wrote:My GP Dr sent my blood test results to a Rheumatologist over in Lynchburg that I want to see but from what I hear, he's super busy. It's been a few weeks now and still no word on an appointment? :(
They are probably waiting for you to call to make an appointment. I've been referred to several doctors over the years by my gp and none of them called me to schedule an appointment, I always had to call them.

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Re: Rheumatoid Aithritis?

Post by Ken0069 » Fri Apr 01, 2016 4:49 am

ijames wrote:They are probably waiting for you to call to make an appointment. I've been referred to several doctors over the years by my gp and none of them called me to schedule an appointment, I always had to call them.
I did call them for an appointment early on but they told me that they would have to have blood test results and a referral from my Dr before I'd get an appointment. My GP says that the info was sent over 3 weeks ago and they also said that it might take a while? Dunno, I guess all I can do is wait at this point. Like I said, lucky it's not life threatening, hey! I may call them this coming Monday if I haven't heard anything by then.
WRIGHTWAY wrote:Best advice never stop moving.
Yeah I've figured that part out. At this point it seems to be worse in my hands than anywhere else. After I wake up, about 5 to 10 minutes of moving around and the stiffness seems to go away, but, I can sit with my hands still for about 30 minutes and they start to stiffen up again.

Hopefully I can see that Dr soon.
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Re: Rheumatoid Aithritis?

Post by Kevin Johnson » Fri Apr 01, 2016 9:56 am

ijames wrote:They are probably waiting for you to call to make an appointment. I've been referred to several doctors over the years by my gp and none of them called me to schedule an appointment, I always had to call them.
Ken, if it is possible you should hand deliver the referral from your GP to the other doctor. Make a copy. Get the name of the person that you gave the referral to in the doctor's office.

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Re: Rheumatoid Aithritis?

Post by sc2dave » Fri Apr 01, 2016 8:02 pm


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Re: Rheumatoid Aithritis?

Post by woody b » Sat Apr 02, 2016 2:38 pm

My nieces husband is being treated with Remicade. It's expensive, but they've got good insurance so I don't think they're part is much. He's like a new man. He's a plumber, and was missing a lot of work before starting Remicade. I don't know what the possible side effects are, but he's doing good so far. (Maybe 6 months or so)
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Re: Rheumatoid Aithritis?

Post by Ken0069 » Sat Apr 02, 2016 3:34 pm

woody b wrote:My nieces husband is being treated with Remicade. It's expensive, but they've got good insurance so I don't think they're part is much. He's like a new man. He's a plumber, and was missing a lot of work before starting Remicade. I don't know what the possible side effects are, but he's doing good so far. (Maybe 6 months or so)
Thanks Woody. I looked it up and it's not pretty!! Here's a lINK to a list of the side effects.

Estimated cost is $1300 to $2500 per dose and it is covered by Medicare. Not sure what my cost of that would be though because the Part D plan I have doesn't cover much. I'm suppose to be able to upgrade to a better plan if needed but they cost much more per month.

The apple cider vinegar one is looking good about now. :wink: Hey, wonder if just plain old hard apple cider would work? :mrgreen:

Thanks for the info guys. By the time I get to see a Dr on this, I may have a fair amount of knowledge about this stuff and will be able to make a more informed decision on my treatment.
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Re: Rheumatoid Aithritis?

Post by RevTheory » Wed Apr 06, 2016 8:09 am

You may want to dig pretty deep into autoimmune disease as the underlying cause. I've been dealing with it for over a decade now and I've seen many times in my studies how RA is a symptom of it.

Something, food allergy, leaky gut, low-grade but long-winded viral, bacterial, fungal infection... something may have your immune system wigged out and it's turned on you. RA is when it's turned on your cartilage.

I hope it helps.

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Re: Rheumatoid Aithritis?

Post by Ken0069 » Wed Apr 06, 2016 11:15 pm

RevTheory wrote:You may want to dig pretty deep into autoimmune disease as the underlying cause. I've been dealing with it for over a decade now and I've seen many times in my studies how RA is a symptom of it.

Something, food allergy, leaky gut, low-grade but long-winded viral, bacterial, fungal infection... something may have your immune system wigged out and it's turned on you. RA is when it's turned on your cartilage.

I hope it helps.
Funny you mention it because I have a brother that's 10 years younger than I am who has lupus. And yeah, some foods seem to make it worse. Hoping the Dr will shed some light on that aspect of it.

Thanks
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Re: Rheumatoid Aithritis?

Post by lefty o » Thu Apr 07, 2016 4:10 pm

RA is a flat biatch! ive been thru a pile of different drugs, and the thing you should worry about is not what it costs, but what works because what works for one does not work for everyone. the faster you get it under control, the less damage it can do, and that is important. in my case , it went after my wrists, and has eaten 99.9% of the cartilidge, and let me tell you. you dont know how important your hands are until you cant do anything with them. pain 24hrs a day, loss of strength, loss of dexterity, etc. it aint no fun, do not F around with it, get it under control before it gets a chance to ruin your life. just about anything i do now, is like being hit in the wrist with a ball peen hammer. if you like pain, go ahead and ignore it, or go for the home remedy BS that may make it temporarily feel better but does nothing to slow it down. this schitt has ruined my life, if your smart you wont let it get away form you.

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